Hi! I’m Madeline! Thank you so much for visiting
my website. My journey started 14 years ago when I was born
with a very rare blood disorder called Diamond Blackfan Anemia. Having
this anemia means my body does not make red blood cells. This is
a rare condition that affects about 1500 people world wide. Currently
there are only a few treatments for DBA. These treatments include
corticosteroids, blood transfusions, or a bone marrow transplant.
For my treatment, I receive a blood transfusion every 3 to 4 weeks.
Living with DBA is tough sometimes but I get through it with the
support of my family and friends. To learn more about DBA and how
you can help, visit the DBA
Foundation and DMAF.org
Remission - A stable, physiologically acceptable hemoglobin, maintained for at least six months independent of corticosteroids, transfusions or other therapy.
Thank you for your support!
Madeline
Click here to visit Etsy Store!
















